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Another reason I don't always believe doctors


Trigger Mike

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during this time you repeatedly hear people say to believe the doctors and scientists.   Today I discovered yet one more time they were wrong and boy am I glad they were wrong.

 

A couple of years ago my 16 year old daughter got sepsis and went to the hospital.   During test they felt she had lupus.  Later we went to her normal doctor who said it was inconclusive but it looked like it to her.  She referred us to a juvenile rheumatologist.   He did test and said it was inconclusive but prescribed the maximum adult dose of hydroparequin (sp).

 

After 3 months of taking it more test were run but still inconclusive .  There was no change in symptoms.   I decided to take her off .  More test were run a few months later and the results were the same.

 

This year during her physical for school band the doctor was more determined that she has lupus.  We said we wanted a different doctor.   This time we went to the university in augusta.  The rheumatologist there , 2 different doctors,  both showed us the lab results and showed how if the other doctors had looked further it would have showed no lupus or other autoimmune illness, the numbers that bothered them occur in 20% of the population.   

 

They will keep an eye on her every few months.   Meanwhile,  what a relief that we stopped listening to the doctors and went with our gut feelings.   What a blessing that she doesn't have those illnesses. 

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Good on you for pursuing other opinions.

 

One way to tell that you have a good doctor:  does (he/she) encourage getting a second opinion?  Good doctors put the patient first, not their egos.

 

Goes for veterinarians, too.

 

Glad you got a less worrisome answer, finally.

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Always good to hear of a good outcome.

 

My mom is a retired nurse, growing up I was not sick or hurt unless I was throwing up, bleeding, or broke something. I have always kinda looked at things that way and I am 58, and healthy and my doc told I was in better shape than most in their 30's at my last physical (Fall 2019). I am not taking any meds for any health problems and from talking to other is seems that there are a lot of pill pushers in the world. However, he still told me I weigh too much. So far this year, I was laid off work at the end of March and I weighted in at 316 lbs, and this morning I weighed in at 281 lbs. I am working on it, but a slow process and was much easier to gain the weigh than take it off. My grandmother made 103.5 years and I intended to beat that and I am barely half done.

 

 

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When something serious has been "diagnosed" it is ALWAYS a good idea to get at least one and maybe more opinions!  And just because you go to a university hospital, doesn't mean they are always right!  I've had that happen with my wife and myself!  There are a number of places that have different specialties.  Even noted clinics may have different specialists at different facilities (if one location doesn't have it, they will recommend one of the other facilities).  Mayo Clinic, for example, has facilities in Rochester, MN, St. Petersburg, FL and Scottsdale, AZ.  There is Cleveland Clinic, M.D. Anderson in Texas, and others.

 

Glad to hear of your daughter's better  outcome.

Stay well, Pards!

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Howdy,

When they say maybe, its time to look further.

Ive been glad I followed the doc but when they arent SURE look out.

Either way it can be tricky.

When I was told I probably needed a bunch of treatments, I decided 

probably wasnt good nuff.  

Or I got lucky...

Best

CR

 

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Yeah, summer of 2012 I had 2 different doctors and a nurse practitioner tell me I was crazy and needed a psychiatrist. Turned out to be a severe B12 deficiency and pernicious anemia; it was becoming very serious before I finally found a doctor willing to listen.

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3 hours ago, Tyrel Cody said:

Yeah, summer of 2012 I had 2 different doctors and a nurse practitioner tell me I was crazy and needed a psychiatrist. Turned out to be a severe B12 deficiency and pernicious anemia; it was becoming very serious before I finally found a doctor willing to listen.

 

But you ARE crazy... :lol::wacko:  Pernicious anemia is pretty easy to diagnose, just a few lab tests.

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Just now, Okie Sawbones, SASS #77381 said:

 

But you ARE crazy... :lol::wacko:  Pernicious anemia is pretty easy to diagnose, just a few lab tests.

 

Not gonna argue on either part :lol::lol::lol:

 

The doctors I was seeing were quacks. 

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Rule #1 in medicine -- at least do the patient no harm. If you don't have a diagnosis, don't treat. Keep digging until you get an answer. If there is no answer, observe until the disease process finally declares itself. Refer if you believe there is something going on, but you can't find it. Don't take the referral doctor's answer to be golden -- sometimes they are wrong.

 

What do you call the person who finished dead last in their med school graduating class? Doctor. :o:wacko:

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Is there anyone alive who has never screwed up on his job?  And no, doctors don't know everything.  I want a doctor who listens to me* and is not afraid (or too egotistical) to tell me when they don't know.

 

*OK, confession: being raised my mama and Aunt Gerry, both nurses, every time I have to go to a new doctor I have to tell them: I'm your worst nightmare.  I know just enough to be a royal PITA.  Want to reassign me?

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We have it so much better than generations before us. We have the ability to research and educate ourselves in order to assist with our treatment. 

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