Need some prayers for my Grand Daughter

[The Shoer 27979]

I have a 2 year old Grand Daughter named Jenny She has Alper. To make a long store very short, they are taking out her breathing tube tomorrow and the chances of her making it till Sunday are slim to no.

 

I don't post this kind of stuff for everybody to see but this little girl deserves a whole lot more and a lot better then she has now

 

 

With much regret and sorrow Jenny passed this morning

 

What is Alpers' Disease?

Alpers' disease is a progressive, neurodevelopmental, mitochondrial DNA depletion syndrome characterized by three co-occurring clinical symptoms: psychomotor regression (dementia); seizures; and liver disease. It is an autosomal recessive disease caused by mutation in the gene for the mitochondrial DNA polymerase POLG. The disease occurs in about one in 100,000 persons.

Is there any treatment?

There is no cure for Alpers' disease and no way to slow its progression. Treatment is symptomatic and supportive. Anticonvulsants may be used to treat the seizures, but at times the seizures do not respond well to therapy, even at high doses. Therefore, the benefit of seizure control should be weights against what could be excessive sedation from the anticonvulsant. . Valproate should not be used since it can increase the risk of liver failure. Physical therapy may help to relieve spasticity and maintain or increase muscle tone.

What is the prognosis?

The prognosis for individuals with Alpers' disease is poor. Those with the disease usually die within their first decade of life. Continuous, unrelenting seizures often lead to death. Continuous, unrelenting seizures often lead to death. Liver failure and cardiorespiratory failure due to brain, spinal cord, and nerve involvement may also occur.

 

 

Edited May 16, 2014 by The Shoer 27979

[Hardpan Curmudgeon SASS #8967]

This is heartbreaking... I'm at a loss for words, other than to say that Jenny, her parents, and all of you are in my prayers.

[J. Frank Norfleet]

Breaks a grand dad's heart. Prayers for the whole family.

L

[Bama Red]

Dang it, Shoer, it just ain't right!

 

Of course my prayers go up for Jenny, her folks, friends and family, and you, Shoer. May your faith give you strength, understanding and peace.

[Ruff]

Howdy Shoer,

 

Prayers up for your grand daughter, her parents and siblings and for all her friends and family. There is nothing that any of us can really say that will ease this kind of pain, but know that we all care,

[Calamity Kris]

I'm so sorry to hear this, Shoer. Prayers up for your family.

[Utah Bob #35998]

Believe me, I feel your pain.

[Henry T Harrison]

you have my prayers no one should have to suffer through this let alone babies

[Dirty Dan Dawkins]

So sorry. I pray for healing, peace and comfort for all of you.

[Badger Mountain Charlie SASS #43172]

So very sorry to hear this, Pard. I have a two year old Great Grand daughter and I can not imagine the pain this must be causing the parents, grandparents and all of the family. I will certainly add my prayers for healing, comfort and for little Jenny.

[Capt. R. Hugh Kidnme]

I'm in for prayers for that little gal. And also for you entire family.

 

CBO

[Chili Pepper Kid, SASS #60463]

Prayers up.

[DocWard]

You have my heartfelt condolences. Jenny, you and your family will be in my thoughts and my meditations.

[Roman T. Range, SASS #44722]

Prayers on the way. No parent should have to bury a child.

 

Roman T. Range

[Rooster Ron Wayne]

Prayers on the way

[Birdgun Quail, SASS #63663]

Oh my.

My heart breaks for Jenny and her family.

Prayers up.

 

God bless,

Birdgun Quail

[Forty Rod SASS 3935]

My prayers are on the way.

[Blackwater 53393]

Add my prayers and those of my family for Jenny and all of her family.

[Grumpy Old Man]

Prayers up for Jenny and the family. That just sucks royally.

[Eamon Chute]

There's nothing more to say than prayers are going out for her and her whole family Shoer.

 

EC

[Apache Hawk 60642]

Breaks this Grand Fathers heart also that Jenny is suffering so much.

 

I am on both knees tonight sending up special knee mail to the Great Creator that He may work a miracle here, if it be his will.

[John Barleycorn, SASS #76982]

Lord please place your healing hand on Jenny, Amen

[Tyrel Cody]

Prayers up.

[The Shoer 27979]

With much regret and sorrow Jenny passed this morning

 

Thank you all for your prayers

Edited May 16, 2014 by The Shoer 27979

[Ruff]

I am so sorry.

[Badger Mountain Charlie SASS #43172]

My condolences to the family

[Bama Red]

She walks the streets of Heaven

With an Angel as her guide

She has no Earthly cares and woes

The Lord is by her side

[StirrupTrouble]

My heart is breaking for you guys. Prayers for comfort going up

[Henry T Harrison]

My deepest sympathies in your hour of loss

[watab kid]

im late to this thread but add my heartfelt sympathy and prayers for all , such a tragic loss

[Blackwater 53393]

May she rest in the right hand of God!!

[Mean Matt McCord, SASS #24683]

Sir, I do not have the words. My deepest sympathies to you and yours.

[Apache Hawk 60642]

I am at a loss for words...........I know not what to say.............

[DocWard]

I wish I had words to offer that would lend comfort to you and your family in this sad time. Know that I will continue to keep you in my thoughts and my meditations.

[Birdgun Quail, SASS #63663]

Godspeed little Jenny. Sweet girl, I'm praying for your family and loved ones.

 

My deepest heart felt sympathies.

 

God bless,

Birdgun Quail